Chronic Hope: the Video

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I feel incredibly grateful. I feel like I’ve been given a second lease on life. If not this time in history, if not this diagnosis, if not so many things along the way, I may not be here. I may not been able to live 20 years with this cancer diagnosis.

It has been a full circle year for me.

This year, my husband and I celebrated 20 years of marriage.

This year, I also have had the privilege to reflect back over my cancer journey from a healthy place, back in the place where it all began.

To cultivate gratitude.

To set goals for the future.

To be amazed by the grace and power of God along the way.

I’m thankful for my amazing husband, Stephen Coats, who produced this 7-minute summary of our 20-year cancer journey:

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This video was produced alongside a series of Chronic Hope articles for the Yemeni American News, 2019:

Georgia Coats is a Language & Culture Learning Coach, freelance writer, educator, wife, and mother of three who is passionate about healthy mind-body-spirit living.  Chronic Hope is Georgia’s collection of stories, lessons, and life adventures of living alongside chronic leukemia, cancer of the white blood cells, for two decades.  She often shares what’s on her mind at: www.onmymindbygeorgia.wordpress.com

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CHRONIC HOPE #6: The Luxury of Looking Forward

“If you can’t fly then run, if you can’t run then walk, if you can’t walk then crawl, but whatever you do you have to keep moving forward.”

Martin Luther King, Jr.

When I was first diagnosed with chronic myeloid leukemia (CML) in my 20s I stopped looking too far forward.  Planning for the future felt presumptuous, so I learned to live more fully in the present.

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September 2019 marked 19 years since my cancer diagnosis.

I’ve had the privilege of reflecting back on 2 decades of living alongside a cancer diagnosis while continuously being treated for it.

4 different cancer treatments.

12+ bone marrow biopsies.

2 cutting edge miracle meds.

3 miracle babies. 

3 times achieving medicated remissions.

2 relapses.

1 Master’s Degree.  

Tens of thousands of dollars invested.

This journey is chronic. Chronic struggles. Chronic tears. Chronic persistence. Eventually forging a resilient chronic hope that anchors the soul.

I have learned invaluable life lessons of chronic hope: 

We all have struggles.  We all need help.  We all seek a hope that is bigger than us.

We don’t rise above our struggles alone.

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I can dare to make long-term goals that are bigger than me, because others dared before me.

In 1959 a researcher identified a very specific chromosomal abnormality present in CML patients.  In the 1990s my first miracle medication was developed—a targeted immunotherapy treatment that was revolutionary.  The standard chemotherapy treatments do not discriminate between healthy cells and cancerous ones, thus, leaving the patient with a myriad of miserable toxicities and a bleak prognosis.  But this miracle medication targeted and treated a very specific problem inside of me, on a genetic level.  It was proven more effective, more efficient, and less toxic than standard chemo.

It changed the world for people like me.

 

Reflecting back is essential for moving forward.

Now, with 3 growing kids, a specialized degree as a language and culture learning coach, and a healthy body in medicated remission, I dare to look forward.

There are so many people along the way who have given of themselves for me to be in this privileged place.

Like the doctor who created my miracle med after building on a researcher’s breakthrough 30 years earlier, what offerings can I bring that just might change the quality of life for a single soul?

These words of Dr. Martin Luther King, Jr. both scare and inspire me:

“An individual has not started living until he can rise above the narrow confines of his individualistic concerns to the broader concerns of all humanity.”  MLK, Jr.

As a language learning coach, I love to champion individuals towards greater possibilities in their lives.  But MLK Jr.’s words challenge me further forward.  How can I rise above my personal cancer and be a part of treating malignancies that face all humanity?

While Dr. Martin Luther King, Jr.’s impact on society was profound, maybe he started with small offerings and a few champions in his life.  I can do that!  I can spend precious life energy trying to figure out my present and future impact, courageously taking small steps forward.

“If I cannot do great things, I can do small things in a great way.”  MLK, Jr.

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Thank you, dear people in my life, who have championed me along the way to fight my battles with cancer—my devoted Greek-immigrant family, my loving husband in sickness and in health, my life-giving friends, my empathetic professors and generous neighbors.

Thank you, doctors and researchers, for devoting your lives and your minds to profoundly changing my prognosis and my quality of life.

Thank you, Dr. Martin Luther King, Jr., for your wisdom and impact on the world, and for encouraging me to bravely take baby steps far beyond my personal cancer.

Thank you, readers, for allowing me to reflect back and dare into the future on this journey of chronic hope.

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This article was published in a series of articles for the Yemeni American News, October, 2019:

Georgia Coats is a Language & Culture Learning Coach, freelance writer, educator, wife, and mother of three who is passionate about healthy mind-body-spirit living.  Chronic Hope is Georgia’s collection of stories, lessons, and life adventures of living alongside chronic leukemia, cancer of the white blood cells, for two decades.  She often shares what’s on her mind at: www.onmymindbygeorgia.wordpress.com

CHRONIC HOPE #5: From Battling Fatigue to Balancing an Energy Budget

I knew the call would come, like the expectation of a winter storm.

My oncologist forecasted that my body would eventually build up a resistance to my medication for chronic myeloid leukemia (CML) after going off of it 3 times to have 3 miracle babies.

That dreaded call came the day after Christmas in the middle of a family movie.  The nurse dictated dates for blood tests and biopsies.  It was clear as I fumbled for a pen while running out of the darkened theatre that she didn’t care which dates worked for my grad school class schedule, my teaching hours, or my family life.

Bottom line, I needed to rewrite my priority list—ASAP!

I was thankful for a short commute between hospital and university in the heart of Detroit.  I naively thought I could change medications and not skip a beat in class.  I didn’t account for the unexpected toxicities of Sprycel, my new miracle medication.  It was super effective in treating cancer.   But my fatigued body could barely make it through a day.IMG_5394.JPG

5 Steps of Energy Budgeting

I know what it’s like to live on a tight financial budget.  I’ve been stretching dollars for decades.  Taking Sprycel syphoned off a significant portion of my energy each day.  It was clear that I drastically needed to rebalance my energy budget to account for success within my new limitations of fatigue.

1. Set Goals

Set clear, attainable goals. Identify the most important places to spend limited resources of energy. For me it was: Finish grad school.  Aspire to excellence—as a mom, wife and student.  As I pushed forward with my Master’s degree, I became a goal-setting master.

2. Prioritize 

Show up wholeheartedly

Decide the most important ways to expend mental, emotional and spiritual energy, and then let go of the other stuff.

If I aspired to excellence as a mom, wife, and graduate student, I couldn’t also be an excellent teacher.  I quit my teaching job, and we creatively rebalanced an even tighter financial budget.IMG_4263

3. Eliminate Excess

Identify and get rid of unnecessary energy drains.  It’s like knowing you’re going to shipwreck if you don’t throw stuff overboard.  Learn to say “NO” to superfluous obligations and to excess noise in your head.

Nursing a grudge or second-guessing good decisions were luxuries I couldn’t afford.  Instead, I learned the energy-rejuvenating power of clear thinking cultivated by a rhythm of rest, walks, and intimate times in prayer.

4. Show Up Wholeheartedly

Once goals are set, priorities are clear, and junk has been eliminated, be present in your priorities. Embrace them fully and generously.

It was costly to be a mother of three and a non-traditional, cancer fighting grad student.  I wasn’t going to miss any of those prioritized moments. I studied hard. I also learned to set studies aside and wholeheartedly cherish puppy movies with my feverish 4th grader as the privileged place of being a mom.

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5. Celebrate Success

Find joy in the things that contribute to success.  Setbacks and shortcomings are ingredients for grit when it comes to celebrating achievement.

I regularly thanked my amazing professors.  When my worn out body ached, I thanked God for my cozy bed as I crawled into it.  I cried tears of gratefulness as my husband picked up my slack at home.

When I finally finished graduate school, debt free, after 5 ½ years, celebrations of success were the sweetest.IMG_5393

I learned to thank God for my miracle medication.

It keeps my body cancer-free.  It has afforded me peace of mind, power in weakness, freedom in limitations, and grace in weariness. I have learned to live more lightly and freely as I regularly surrender all my priorities to my highest priority of all—loving God with all my heart, soul, mind, and strength.

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This article was published in a series of articles for the Yemeni American News, September, 2019, p. 10:

Georgia Coats is a Language & Culture Learning Coach, freelance writer, educator, wife, and mother of three who is passionate about healthy mind-body-spirit living.  Chronic Hope is Georgia’s collection of stories, lessons, and life adventures of living alongside chronic leukemia, cancer of the white blood cells, for two decades.  She often shares what’s on her mind at: www.onmymindbygeorgia.wordpress.com

 

CHRONIC HOPE #4: A Potential Risk of Fighting Cancer

“How dare you be so irresponsible with your wife’s health?  Don’t you understand the risks you’re putting her through by getting her pregnant in her condition?”

I watched my husband’s face change from shock to anger as the nurse unleashed her stern lecture on him.

Five years into marriage and four years into my cancer diagnosis, I was nearing my 30th birthday.  We had given up on making long-term life goals.  I let go of the dream of living abroad for language and cultural studies, and I quit graduate school.

But the dream of being a mom got stronger.

My super-effective miracle medication for chronic myeloid leukemia (CML) extended both my quality and quantity of life.  Aside from 3-month check ups, an annual bone marrow biopsy, and my daily meds, I lived a normal life.  But normal life made me hope for normal things, like a family of my own.

Truth: In this world we all face struggles.

My doctor was STUBBORNLY clear: pregnancy was out of the question.  It was too risky to subject a fetus to the potentially hazardous effects of my miracle meds. And it was too risky for me to go off my miracle meds for any reason.

After multiple heart-wrenching conversations, desperate prayers, and seeking counsel from others who had faced life’s storms and held on to hope, my husband and I felt like it was risky NOT to start a family.

Two significant things happened:

  1. We learned that we must calculate our risk and take the first step into the storm; and expect God’s reassuring presence to show up along the way.
  2. My stubborn doctor left. His replacement was willing to treat me as a whole person, instead of just treating my disease.  We needed someone to champion for the fullness of life.

Hope is a function of struggle. 

“Hope is a function of struggle,” affirms Brené Brown, author of Daring Greatly: How the Courage to be Vulnerable Transforms the Way We Live, Love, Parent & Lead.

Eighteen months of chemotherapy injections were considered “safe” for growing three wondrous new lives, but they left me feverish and weak.  As I lay limp on the couch, I regularly recalculated our risk.

Giving up a safe miserable life without big dreams, for the opportunity to cultivate new life, changed something in me forever.  Ultimately, wherever beauty and life-giving possibilities exist, they are worth the pursuit.

Brené Brown reminds us that, “the willingness to show up changes us. It makes us a little braver each time.” 

My desire to be a mom dared me to set 9-month goals.  Three times. That led me to reconsider the daunting goal of graduate school to become a Language and Culture Learning Coach—this time as a non-traditional, cancer-fighting, mother of three.

Chronic struggles forged profound hope that pushed me higher and deeper in mind, body, and spiritual potential. And, in setting an example for my miracle children to live courageous lives.

The ongoing challenge is to keep hands open while living courageously—to never close in on the great gifts of life we’ve been given. I’ve been given 20 years to cultivate chronic hope. IMG_4212I find myself in a privileged place to champion others.  My heart is for those who face war, leave home, and migrate across cultural and linguistic barriers in search of the fullness of what life can be.  To these souls I hold out small offerings with open hands.

What are your dreams, forged in struggle?

Who are your champions?

What are the little offerings in your hands?

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This article was published in a series of articles for the Yemeni American News, August, 2019:

Georgia Coats is a Language & Culture Learning Coach, freelance writer, educator, wife, and mother of three who is passionate about healthy mind-body-spirit living.  Chronic Hope is Georgia’s collection of stories, lessons, and life adventures of living alongside chronic leukemia, cancer of the white blood cells, for two decades.  She often shares what’s on her mind at: www.onmymindbygeorgia.wordpress.com

 

CHRONIC HOPE #3: Cancer Complicates My Identity Issues

The life of a creature is in their blood.  Blood is the essence of who a person is.

By blood I am Greek.  By nationality I am a U.S. citizen.  By education I am a Spanish speaker.  By cultural experiences I resonate with my Middle Eastern neighbors of Dearborn, MI.  By faith I am a follower of Jesus the Messiah.

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My whole life I have dabbled in multiple worlds, cultures, languages, and social groupings.  I hover on borders, struggling to figure out where I fit in.  That’s why I became a Language and Culture Learning Coach.

That’s why I have identity issues.

Enter Cancer.

By blood I have a cancer diagnosis.  More specifically, chronic myeloid leukemia (CML) is cancer in my blood cells.  Ironically, the white blood cells that function to fight off disease have become diseased.

Someone advised early on,

Don’t let your cancer diagnosis define who you are.

That piece of wisdom has both haunted and inspired me for that last 20 years.

When cancer runs in your blood, how do you not let it effect who you are?

To complicate things even more, I am on a cutting edge, super-effective, immunotherapy treatment. No complaints there.  When I tell people I have cancer, they want to know: Am I a survivor? Am I in remission? or Am I still battling the disease?  YES!  I dabble in all of those things.  My treatment keeps me in remission, as long as I keep taking it, daily.  Forever.

In my blood, disease moves slowly.  It’s a lifelong chronic disease, which makes me a peripheral member of another group.  The Chronic Illness Group.  People with chronic illness spend a lifetime on meds, and suffer from their diseases for decades.  There’s no glory in chronic illness.  To find support and strength in a chronic struggle, it helps to own it.  To identify with others who struggle in a similar way.

Blood-Related Issues

This summer I will travel to the Old Country, Greece, with my parents, siblings, and kids, to share with my kids a sliver of their heritage—of the identity that runs in their blood.  We will kiss my aunties and meet another generation of cousins.  We will eat great food and connect with the passion, grit, and generosity of our people.  I will admit my shortcoming to learn, and to teach my kids, the Greek language.  Relatives will look at me through the sympathetic cancer lens and say I look good, considering my health issues.

While I don’t want to be defined by the disease in my blood, I also cannot deny that it hasn’t had a significant impact on who I am.  Cancer brings definition to my character.  And for that, I am grateful.

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Thankfully, YOU don’t have to have my issues to embrace the wonderful beauty of your design.

And together let’s learn to share in the struggles of others.

Because, cancer or not, we all have issues.

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This article was published in a series of articles for the Yemeni American News, July, 2019:

Georgia Coats is a Language & Culture Learning Coach, freelance writer, educator, wife, and mother of three who is passionate about healthy mind-body-spirit living.  Chronic Hope is Georgia’s collection of stories, lessons, and life adventures of living alongside chronic leukemia, cancer of the white blood cells, for two decades.  She often shares what’s on her mind at: www.onmymindbygeorgia.wordpress.com

 

CHRONIC HOPE #2: Learning to be healthy and have cancer

“Wow!  You look great. Did you lose weight?”

In my late 20s and newly married, I enjoyed the positive feedback on an otherwise bleak situation. I joked to myself, Yeah, it’s this great new plan… the CANCER DIET.  But in real life, I awkwardly responded, “Thanks,” with no explanation of the dark secret to my weight loss success.

Then there were the people who knew I had recently been diagnosed with chronic myeloid leukemia (CML). They said things differently.

“Awww, you look really good,” which was accompanied by a sympathetic head tilt and a hint of relief. They were glad I wasn’t bald, pale, and gaunt like the poster child for the Leukemia Society.

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I felt overwhelmed by these new life circumstances out of my control.  I needed to manage something.  This was stirring in me a passion for healthy living.

But, what is healthy?

Before my diagnosis, healthy meant the opposite sick.  After my diagnosis, healthy meant giving my body its best chance to thrive in the given circumstances.

Healthy meant being a wise manager of things I COULD control.

Healthy also meant not over-worrying about the things I couldn’t control.

I couldn’t control leukemia. And I didn’t know how to manage the overwhelming feelings of fear, loss, and dying dreams.

If chronic leukemia was my new normal, I needed effective survival skills.  I needed to nurture hope and figure out healthy ways to interact with chronically present negative emotions.

With cancer come toxicities.  

Toxicities that wear on the body accompany even the best cancer treatments.  Also in the shadows of effective cancer treatments looms the real threat of financial toxicity.

Healthy meant identifying and eliminating unnecessary toxicities while learning to live with the necessary ones.

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I couldn’t control the toxicities of my treatments, but I could help my body be strong enough to handle them as best it could.  I rested more.  I ate less sugar.  I tried to stay active even when I felt fatigued or depressed.

I learned to sort my worries.

Author Amber Rae, in her book, Choose Wonder Over Worry: Move Beyond Fear and Doubt to Unlock your Full Potential, says that not all worry is bad.  We need to get rid of toxic worries so we can more clearly address healthy worries.

Devastating life challenges can be toxic on a marriage.  Or, they can make a marriage stronger.  The guilt of being a burden to my new husband was toxic.  But I couldn’t eliminate it on my own.

My husband chose to share my burden and join in my sorrow.  He waded through bills, unsolicited advice, and on hold with the doctor’s office.  He always referred to our diagnosis.  He took seriously his role of tenderly caring for his wife.

Together we learned to weed out toxic worry and trust God with each specific life challenge out of our control.

Rae describes healthy worry as a complement to wonder,  “If worry is the fear of what could go wrong, wonder is the curiosity of the unknown.”

I was far from nurturing curiosity.  But I could take baby steps towards healthy.  I felt empowered by healthy eating habits and an exercise routine.

For my husband and I, healthy meant being in the best spiritual, physical, and state of mind we could be to thrive through the toxicities we couldn’t control.  Healthy meant taking on our new life challenges… together.fullsizeoutput_2ec1This article was published as the second in a series of articles for the Yemeni American News, June, 2019:

Georgia Coats is a Language & Culture Learning Coach, freelance writer, educator, wife, and mother of three who is passionate about healthy mind-body-spirit living.  Chronic Hope is Georgia’s collection of stories, lessons, and life adventures of living alongside chronic leukemia, cancer of the white blood cells, for two decades.  She often shares what’s on her mind at: www.onmymindbygeorgia.wordpress.com

 

CHRONIC HOPE: A Cancer Diagnosis

Misery. Unknown. Disappointment. DEATH

These are fears common to all human beings.  There is nothing like a cancer diagnosis to encompass a few of these basic fear elements. I faced a dreaded diagnosis when I was 27 years old, newly married, and had many hopes and dreams of traveling the world and raising a family.  I was in graduate school and hoping to do some Middle Eastern studies abroad.

After a few persisting headaches, some minor weight loss (which I didn’t mind), and some severe exhaustion, my concerned new husband insisted I go to the doctor.  A battery of blood tests and an excruciating bone marrow biopsy confirmed my diagnosis.

Naturally, the worst fear of a cancer diagnosis is death. I remember the first time someone asked me what my prognosis was.  I didn’t even know that word.  I had to look it up, and let it sink in that people were actually asking me when the doctors think I might die.  That was crazy!  I was still in my twenties!

“Good news!” the hematologist-oncologist told me after he had confirmed my particular label, Chronic Myeloid Leukemia (CML).

“You’re young.

You were diagnosed early on in the development of the disease.

It’s chronic, so it develops more slowly.

We have promising new research and treatment for CML.”

Though the doctor meant well in his optimism, I wanted to punch his smiling face.  These factors were all in my favor to avoid death.  But what about living a miserable life?  What about dreams of starting a family?  So many unknowns.

The strange thing about a cancer diagnosis, is that once you face one, you never have to go through that first experience again.  I had faced one of my greatest fears and was figuring out how to live with it.

My disease was chronic.  Cancer and I were planning to coexist side-by-side for a long time.

Fear stayed.  I learned to keep company with unknowns.  I learned to embrace intimate encounters with disappointment.

My husband and I worked hard to make sense of our new circumstances.  I quit graduate school.  really hate quitting.  I gave up the dream of studying abroad.

Two things were certain amidst the unsettling unknowns: 

1. God is still God and He is good.

2. My husband was by my side, and together we would figure it out.

With those two certainties, we learned to cultivate hope.

“Hope is not the conviction that something will turn out well, but the certainty that something makes sense, regardless of how it turns out.”

Vaclav Havel, Czech writer and statesman.

My disease was chronic.  My fears were real and present.  Hope wasn’t just the optimism I needed to “fight this thing.”  We were clinging to the hope that this diagnosis would make sense in our lives—eventually.  Someday, our hope would be greater than our fear.

We have to make sense of the difficult things in our lives otherwise the prognosis is despair.  And humanity cannot heal when it despairs.

To ponder…

A friend of mine going through a difficult time compared her life to a garden in the winter. She said, “Hope is the promise that things will grow again.”  How do you make sense of the difficulties in life?  How would you describe hope?

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This article was published as the first in a series of articles for the Yemeni American News, May, 2019:

Georgia Coats is a Language & Culture Learning Coach, freelance writer, educator, wife, and mother of three who is passionate about healthy mind-body-spirit living.  Chronic Hope is Georgia’s collection of stories, lessons, and life adventures of living alongside chronic leukemia, cancer of the white blood cells, for two decades.  She often shares what’s on her mind at: www.onmymindbygeorgia.wordpress.com

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Defining “Neighbor”

I first met Maude* when my toddlers began to waddle northward towards her house.  She was tall and gaunt with a sensible silvery bowl cut.  Even when she was being friendly, she had a naturally sharp tone behind most of her curt comments.

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We intentionally moved into the neighborhood for the richness of its cultural, linguistic, and religious diversity.  We wanted to take to heart the command of Jesus the Messiah—to love God with all our hearts, and to love our neighbors as ourselves.

When a wealthy young man challenged Jesus to define neighbor, he responded with a beautiful story of a compassionate Samaritan man who met a Jewish man along his path in a moment of desperate need.  The Samaritan had to cross cultural and religious boundaries, and face the prejudices of the day to help.  It also cost him time, effort, and money to bring comfort, healing and blessing to the wounded man.

Our family has a lot to learn from Jesus’ story and expectation of loving our neighbors.  We have been challenged to cross over boundaries and enjoy the adventure of diverse neighborly relationships.  The challenge and the joy are mutual.  Our kids have grown up alongside our Arab Muslim neighbors and we have shared life together—the ice cream truck, henna, pass-the-plate wars, front yard games, and even the great flood of 2014.

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#lovingmyneighbors

Arab hospitality is a thing.  Kindness expressed through great food is a debt we can never repay.  On our south side there is the Lebanese widow of four grown children.  She makes great hummus and has a very cute puppy.  Next to her is a young Yemeni family, a sweet elderly retired Iraqi educator, and a Palestinian family.

IMG_5346To our north are a few more Yemeni families who throw great girl parties and provide my kids with an endless supply of sweet treats, especially during Ramadan. Next to them is Hussein, the paper airplane guy, and his sister Latifeh, working professionals who live with their elderly parents.

And Maude.

Our kids knew Maude as the one who lived next to paper airplane guy, since he revolutionized our world with his simple craftsmanship of paper pleasure.  They clearly knew to avoid Maude’s house.  She didn’t have patience for noisy flocks of neighborhood kids. Through our outdoor springtime encounters I learned that Maude had a lot of brokenness and sorrow in her life. She had a soft heart protected by a tough exterior.  I tried to listen compassionately while always keeping one eye on the kids, the street, the ball, and the cars going by.

But what came next caught me off guard.

In her quiet quick undertone, she expressed how glad she was, that even though we had noisy toddlers, at least weren’t ARABS.

What??!!!

It slipped out so fast that I did what I tend to do in awkward conversations—I second-guessed what I really heard. It was often in that mommy-distracted place that Maude slipped in a few more of her opinions about our Middle Eastern neighbors.

Always one-liners.

Me always wishing I had a great comeback.

Years passed.  Kids grew. Maude got older and frailer.  I noticed Maude walking alone, a lot.  As a fellow walker, sometimes I joined her. She would uncharacteristically slip her arm into mine and ramble on and on.  She would oscillate from sweet melodic chitchat to swearing up and down. One morning I saw Maude wearing two different shoes.  Another time she had wandered down a street far from her normal route.  She looked lost.

Hussein happened to be home when I dropped Maude off at her house. Her dementia was getting worse.  Hussein, his sister Latifeh, and their parents took it upon themselves to keep a close eye on their aging and lonely next-door neighbor.

It was Hussein that would walk with her in the evenings up and down the block—matching her frail snail’s pace.

It was his parents who would have breakfast with her every morning.  They were the ones who found her after she had fallen, at the bottom of her staircase.

It was Latifeh who left work upon the emergency call from her parents describing Maude’s injuries.

Maude passed away shortly after that accident.

I had moved into the neighborhood to live out what Jesus taught. I thought I understood.  I thought I could be an example of a good neighbor. And we have been richly blessed by generous neighborly relationships.  But we have so much more to learn.

Hussein and his family exemplified day-to-day intentional care for Maude. Being inconvenienced for the welfare of another.  Advocating for the vulnerable.  Even loving someone with a blatant prejudice against “those people.”  Maude wasn’t the easiest person to love.  But Hussein, Latifeh, and their parents took the time to truly care for the needy, the lonely, and the lost along their path of life.

 Maude’s words still trouble me. 

What troubles me is that she is not alone in her racial one-liners.  There will always be more.  They will always feel like unexpected sucker punches.  Now is the time to devise my crafty, yet compassionate, comebacks.  To be ready to give an answer and to stand up for what is good and right and true.  How would Jesus do it?

I am open to suggestions.

And in the meantime, my neighbors have given me a lot to think about as I seek to understand the true definition of neighbor, the way Jesus the Messiah meant it.

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*Maude is a pseudonym.  Latifeh and Hussein are the real names of my neighbors who collaborated with me on this article. Thank you, habibti, for your beautiful stories.

This article was published in the Yemeni American News, June 2018

 

Fasting and Feasting: Looking in on Ramadan

Man does not live on bread alone, but on every word that proceeds from the mouth of God. (From the Tawrah)

Last month, my husband and I joined our good friends at a beautiful Islamic wedding reception. He went with the men, and I with the women. It was an incredible celebration of dancing, drums, exquisite dresses, and incredible cuisine. It was a time to usher in something new and something beautiful—the union of a husband and wife in their new life together. I admired the abundant display of fruit platters and little cakes and cannolis that donned the back table. They were a vision of sweet, delicious things to IMG_1711come. And though I didn’t understand much of the Arabic conversations going on amongst the ladies at my table, I understood the topic of Ramadan on the lips of many. It seemed as though everyone was anticipating this month of fasting and all that it entails.

Growing up in a Greek Orthodox Christian home, my family practiced 40 days of Lent—a vegan diet, abstaining from meat, dairy and other animal products, in anticipation for the celebration of Easter. Easter is the focal point of the Christian calendar. It is a time to celebrate new life, new hope, redemption, and forgiveness as we 2010 04 04 Easter – Version 2reflect on the path of suffering and victory of Jesus the Messiah. The joy of Easter is intertwined with the fasting that comes before it. As a child, my favorite Easter treats were little chocolate eggs in a colored
candy shell. I remember trying to sneak around the kitchen to curb my chocolate craving during Lent, leading up to a grand resurrection celebration. Then, on the Saturday evening before Easter, we would dress in our best celebratory garb and attend worship services long past midnight. All I could think about was arriving home to feast on all the delicacies and choice foods we had abstained from for forty days. How sweet those treats tasted after waiting so long to eat them!

The guests abstained from celebrating until the bride and groom showed up.

When I lived on my own, away from the community aspect of this Greek Orthodox Lenten practice, I realized quickly that the little chocolate eggs didn’t taste as delectable as they did when I had abstained from them and anticipated them for 40 days. There is a time for fasting and a time for celebrating. Both are important. Jesus the Messiah used the example of a wedding feast when he described fasting to his followers. He explained that when the bridegroom enters the wedding, this is a time for celebrating. How true it was at the wedding we attended last month. We eagerly anticipated the arrival of the bride and groom. We all abstained from celebrating until they showed up.

Fasting brings to the surface our inner reality.  S. Sohaib

Sometimes I fast privately, abstaining from all food and drink, day and night, for a specified amount of time, in order to focus on prayer and listening to God. The growls in my stomach are a reminder to pray. Fasting forces me to depend on God, even before food. After all, Man does not live on bread alone, but on every word that proceeds from the mouth of God. Fasting teaches me to listen more carefully to the words of God. Fasting is both a spiritual discipline and a physical detox. It is a time to rid our bodies of unhealthy toxins and also expose the dark places in our spirits. According to Qur’an scholar Sohaib Saeed of the Bayyinah Institute, “fasting brings to the surface our inner reality.” This is so true. When we are weak, our true nature comes out.

Version 2I have studied other languages prior to Arabic, and it never occurred to me before to learn the vocabulary to talk about fasting. But in Arabic, and among my Muslim neighbors, fasting is an important topic of conversation. Living in a primarily Muslim community for the last 15 years, I have learned other valuable lessons on fasting. I appreciate the power and joy of fasting in community and breaking fast in community. My family anticipates the month of Ramadan, and not just because we are on the receiving end of the mandate to generously share with one’s neighbors. We, as part of a Muslim community, are impacted greatly by the month of fasting at our kids’ school, at the local places of business, and among friends. During this month, I am grateful to live in a community that pushes me to teach my children about this spiritual discipline at an early age. I love that kids have discussions about fasting on the playground!

Set aside a time to seek God, to embrace our weakness, and to anticipate the sweet celebrating that follows.

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Whether fasting is for 30 days, breaking fast each evening, or whether it is for three days and nights straight, or a restricted diet for 40 days, what matters is the spiritual lessons that come from it: to set aside a time to seek God, to embrace our weakness, and to anticipate our breaking of fast, and the sweet celebrating that follows—like when the bride and groom show up to the wedding feast!

Published in the Yemeni American News, June 2017

 

An Unintended “We”

We the People of the United States, in order to form a more perfect Union, establish Justice, insure domestic Tranquility… promote the general Welfare, and secure the Blessings of Liberty to ourselves and our Posterity… 

Preamble to the Constitution of the United States

I can usually spot negative and hate speech coming from one group against another by the signature word they. “They don’t belong here.” “They do things differently.” “Why do they ________ like that?”

For Spring Break my Greek Immigrant parents came from sunny Colorado to visit my home in soggy Michigan. They did all the fun spoiling that any Yiayia and Papou would do with their grandkids. Amidst all the excitement, I invited my parents to come with me to spend some time with Zuzu, my Kurdish-Syrian New American friend. I had met her last October, at a free community event sponsored by Sabeel Media at the local library, discussing the responsibility of the media to share the experiences and needs of refugees. That event inspired me to scooch over, and make a little room in my life for the refugee crisis that faces us all as human beings.  I am regularly challenged by the command of Jesus the Messiah to love God with all my heart, soul, mind and strength; and to love my neighbors as myself. I have been visiting with Zuzu weekly for the last six months and she has taught me so much about friendship and hardship and Arabic and Kurdish. In turn, I have taught her about American systems, and phone systems, and English words. She calls me her teacher, but I call her my friend. Through it all we have become tied to each other.

There is so much political rhetoric for and against the topic of refugees, but to actually sit and sip tea with a neighbor who happens to be one seemed like a novel idea.

My parents were eager to meet Zuzu and her family. There is so much political rhetoric for and against the topic of refugees, but to actually sit and sip tea with a neighbor who happens to fit that category seemed like an interesting and novel idea. Before our visit, I prepped my parents on who to shake hands with or not shake hands with, where to put shoes, and how to sit on low couches—even with my dad’s recently replaced knees.fullsizeoutput_cc5

Zuzu warmly opened her modest upper flat to my parents and my three kids on a rainy March afternoon. We sipped little cups of rich black tea with as much sugar as my kids wanted. We touched on topics of politics, dictators, and dialects as we observed Kurdish television rattling on in the background. We shared a lot in common. Our little visit brought back some nostalgic memories for my mom, of the way visits used to be for her as a child growing up in a Greek immigrant community, where people shared simple but special moments together in each other’s homes. And the TV rattling in the background was normal for my dad—only his gets all the best Greek news stations.

Version 3There was a pause in our conversation, which gave Zuzu a moment to form a question in English. She asked my father if he left Greece because he was a refugee. He shook his head “No,” but then proceeded to explain in short sentences that his Greek village was ravaged in World War II, and that his parents were killed. Years later, he immigrated to the U.S. in search of a better life. The look on Zuzu’s face was full of compassion and understanding as she responded to the look of great loss on my dad’s face. Different generations. Different countries. Different wars. Different dictators. But for a moment, Zuzu and my dad were ushered into the same horrible club of loss, tragedy and destruction by war. It’s a large club that no one wants to join, but many are forced into its membership. As I sat and observed this unintended “we” moment between my father and Zuzu, I said a silent prayer for her young children. I am a product of my dad’s hope for a better life in a new land. Maybe our family gives Zuzu perspective on what things might look like for her young children as they grow up to call this new land their home. At least for now. I know deep down, Zuzu really hopes to take her children back to her home country of Syria in better times, Inshallah, God-willing.

As we said our good-byes, I thanked God for this incredible moment to share with my family and my friend. We were blessed. We enjoyed each other’s company. Our human hearts beat the same, and by unintended circumstances, we had more in common than we imagined. We, the people, who long for justice and tranquility in a more perfect Union.

We had more in common than we imagined. We, the people, who long for justice and tranquility in a more perfect Union.

Published in the Yemeni American News, May, 2017