My COVID-19 Lament

Last week in a Trauma Healing group we explored the genre of lament. Lament is simply an expression of grief. And grief is mourning a loss.

Where has the genre of lament been all my life?

When we came to the exercise of writing our own lament, the turmoil of my heart flooded onto paper. I felt a deep sense of validation by this genre that had its own unique purpose and parameters.

In many ways I feel drawn to grief. Just as some people are the life of a party, I feel connected to others in times of grief–it’s when our hearts are most vulnerable and we are in a place to process raw emotions. Grief is a significant part of life, and as a culture I’m not sure we do it very well.

So here is my current lament–an expression of my grief about the pandemical state of our world. A complaint taken directly to the Divine.

My COVID-19 Lament

O God—enough is enough!

How long must people—Your people made in Your image—all over the earth suffer?

We are sick.

We are dying.

We struggle to breathe.

We are made to grieve.

How long will this go on?

You’re the One who put breath in our lungs.

You can make this stop.

You can make this matter.

We have wandered far.

Gather us back with fresh air and fresh Spirit.

Turn our eyes and our hearts and our breath towards you,  

That we may cry out to you with all that is within us.

You alone are Life-Giving God for all people.

Come quickly.  Bring life. 

Bring healing to our bodies and souls and to all the nations.

Be the breath in our lungs and the praise on our tongues.

Praise the LORD, my soul; all my inmost being, 

praise His holy name. 

Praise the LORD, my soul— 

The One who forgives all our sins and heals all our diseases. 

I will wait on you.

I will wait for you.

I will wait with you.

I expect you to make our struggles matter.

You are worthy of all our praise with all our breath.

Then all the earth will shout Your praise.

Our hearts will cry, these lungs will sing:

Great are You, Lord. Great are You, Lord.

Just Come

🎶 Come, they told me, pa rum pum pum pum 🎶

I’m not sure what’s in it for me.  I keep asking myself what my expectations are.  I keep searching my own intentions.  There’s a time investment.  There’s a financial cost.  But there is ZERO obligation.  And yet I keep coming.  The vortex of need is overwhelming—beyond what I could possibly make a dent in.  I’m not naïve enough to think I’m taking on the role of superhero or white savior.  In fact, I feel pretty small and ill-equipped. 

And yet, every time I come, my heart is full.  Not because I solve big problems.  Sometimes when I show up, I can’t even solve the smallest of problems.  

🎶 O Come all Ye Faithful, Joyful and Triumphant 🎶

The interactions with this sweet neighbor and her family resettled in my community have changed something in me.  The gift is mine.

There are other faithful people who come.  If I didn’t show up and attempt to meet any of their needs, they would figure it out a different way.  They are survivors.  They survived and thrived and moved forward long before I knew this beautiful family.

🎶 Joy to the World, the Lord is Come 🎶

Last week I took the 14 year old daughter of my sweet neighbor to the doctor for a well-visit.  She rallied for her own appointment. I taught her how to fill out medical forms.  I showed her where her mom would need to sign so she could legally manage her own healthcare.  It’s not that her mom wouldn’t love to come, caring for her precious daughter.  It’s just that as a single mom of 10 kids, working fulltime at the meatpacking plant while studying English at night, there’s just not enough time in her days to navigate a well visit for child #5.  

$23.19.  That’s the price for two over-the-counter medications and a prescription of Vitamin D not covered by Medicaid.  I plotted ahead on our way to the pharmacy.  I was ready to be a joyful giver.  $23.19—paid, gladly.  We sat together on a bench at the back of Walgreens, and I taught my young friend the difference between prescription drugs and over the counter ones. 

🎶 O Come Let Us Adore Him 🎶

Dropping my friend off at her house, after quizzing her repeatedly on how to take her new meds, my heart was full—again.  She thanked me for spending my own money.  Her gratitude was an unexpected bonus.  As we said goodbye, I told her that many have helped me in my life, even with medication.  Maybe someday she’ll have the opportunity to help someone else pay for their medication.  Freely I have received abundantly from kindnesses I could never repay.  And in that moment, I was grateful for an opportunity to freely give. 

I came home from that event scrambling to answer a call from my Specialty Pharmacy about a recent delivery of my leukemia medication—the super expensive immunotherapy drug that I take every day, for ever.  The operator politely informed me, “You have an outstanding balance of $5668.64, would you like to go ahead and pay that now…?”  

What!? NO!!  I can’t pay that now, or ever, really.

I hung up the phone with a deep sigh and flopped on the couch.  

Sunlight and quiet beckoned me to be still.

I came for just a moment—empty-handed and wholehearted—into the presence of Divinity.  And something shifted in my soul.

I came reviewing the vulnerable places I had just been with my 14-year-old friend.  I came with the satisfaction of having paid her pharmacy bill in full—all 23 dollars and 19 cents of it.  I came offering up my own fear and outstanding pharmacy bill.

I came not knowing.

🎶 O Come O Come Emmanuel 🎶

Christmas is about coming. O come Emmanuel.  God be with us!  Joy is that the promised Messiah is come.

That’s Jesus.

O Come, Desire Of The Nations, Bind
In One The Hearts Of All Mankind;
Bid Every Strife And Quarrel Cease
And Fill The World With Heaven’s Peace
.

Jesus came to restore peace on earth, but he showed up first as a newborn—the epitome of defenseless, vulnerable, and needy.

His first invitation was to come and allow others to care and adore Him.

I have come so many times, vulnerable and weak.

So when a 14 year old vulnerably entrusts me to come into her need for medical care, I feel summoned to privilege.  The gift of presence—her presence with me.  The joy of seeing someone’s humble self and meeting them in that place.  Sharing a holy space.

The invitation of Christmas is to just come.

Come needy.

Come heavy.

Come weak.

Come ready.

Come all you faithful.

Come with hands full, ready to give.

Come with hands empty, ready to receive.

Come along with Him.

Come back.

Come over and just be.

Come in need of $23 or $6000.

Come with your whole self.

Even if you have nothing to bring that’s fit to give a King, just come.

Rising Above

An individual has not started living until he can rise above the narrow confines of his individualistic concerns to the broader concerns of all humanity.  MLK, Jr.

I’m not sure if I’m haunted or inspired.  

  • 20 years and I’m still trying to figure out living.
  • 20 years since my leukemia diagnosis in September of 2000.
  • 20 years of grasping at my sense of self in the midst of chronic limitations. 
  • 20 years of a tenacious spirit learning to dance in fragile body.

How can I rise above my personal cancer and be a part of treating malignancies that face all humanity?

This question has been weighing on my mind since last September.  I needed to rise up for my journey of Chronic Hope in order to clarify my identity.  

20 years later, there is clarity to rise.  But rising above is not a climb.  

It’s a descent. 

My challenge, quarantined in 2020, has been to listenlament, and repent of injustice in myself and in our culture.  To weep with those who weep and mourn with those who mourn.  I really wanted to just take action.  But I had not stopped to consider the lack in my understanding of justice and society.  And how justice for all reflects the heart of God.

There is a lot of humble stillness and lowly heart work involved in rising.  Nothing glorious or stunning.  Just quiet, dark, quarantined heart work.

If the world had not shut down in a global pandemic, would I have done that work?  

I don’t exactly know how to take action, but one thing has become clear: 

If I don’t take action, something in me will die.  Or will never have the chance to truly live.  

So, from this humbler and haunted place I desperately seek to learn in community from those who are taking action. To join. To grow.  To serve.  I thought the vulnerable and the marginalized needed me.  It turns out, we need each other.

Rising above is not mine to achieve.  Starting to live is not mine to map out.  

Mine is to quietly join the labors of love.  

  • To learn from those who weary their hearts and dirty their hands for the plight of others.  
  • To allow the plight of the vulnerable to be felt deeply and personally.  
  • To understand how to do justly, because I cannot truly love mercy without it.  Mercy accompanies justice.
  • Ultimately, to surrender the sense of self I’ve worked so hard to grasp.

Mine is the work of vulnerable humility.

Rising belongs to the Divine Hand that is strong and wise enough to lift me up in due time.

Just curious… what are the daunting malignancies you’ve been called to rise above?

White Noise—A Cry of Repentance

I’m sorry.

Not I’m sorry, but…

Not I’m sorry, in general.

 

Rather, specifically…

I’m sorry for my ignorance that has perpetuated an unjust status quo.

I’m sorry for my silence when advocacy was needed.

I’m sorry for all the little compromises that left your life more difficult and exhausting.

 

I’m sorry for my complicity in racism.

  • For my fear of not knowing what to do, and so yielding to inaction.
  • For letting false White conceptions of color blindness go unchallenged.
  • For not understanding how the systems I’m a part of and benefit from have put me in a privileged place at your expense.

 

I’m sorry for the White sorry buts that add salt to your wounds.

I’m sorry for being dismissive when the problems of society get too scary for me to handle.

I’m sorry for allowing this or that movie about ugly White racism to appease my conscience and make me feel like I get it—when I don’t.

I’m sorry for getting so used to Black bad news that it has become noise in the background of my passive tranquility.

I’m so sorry for reducing your trauma to my White noise.

 

Deliver me from the guilt of bloodshed, O God, you who are God my Savior, and my tongue will sing of your righteousness. 

Open my lips, Lord, and my mouth will declare your praise. 

You do not delight in sacrifice, or I would bring it; you do not take pleasure in burnt offerings.

My sacrifice, O God, is a broken spirit; a broken and contrite heart you, God, will not despise.  (Psalm 51: 14-17) 

Lord, forgive us for the pride of thinking we’re innocent.

Lord, expose the hypocrisy in our breaking hearts and lead us to repentance.

Lord, forgive me for being an ambassador of peace but not understanding justice.

Lord, forgive me for being so passionate about Your great love for all nations and tribes, races and languages, yet somehow not having eyes to see and ears to hear the trauma and injustice of my Black brothers and sisters.

Lord, forgive us for our White supremacy—for standing too high on a pillar of infection—like an abscess on our nation.  It’s disgusting.

Lance it. Drain it. Then, heal it.

Like a boil that must be opened with all its ugliness to the natural medicines of air and light, injustice must be exposed to the light of human conscience before it can be cured.   MLK Jr.

 

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I see now that racism is a White problem.

I understand now that Black Lives Matter—so much.  I’m sorry I never said so sooner.

I hear your cries of grief.  I’m sorry it took me so long.

I shudder at the images of George Floyd’s murder. And Ahmaud Arbery, and Breonna Taylor.  I’m sorry for your loss.  Your losses.  I’m sorry for the innumerable losses that have gone unseen.

I can know better.

I can be better.

I can do better.

It’s not your responsibility to enlighten me.  But many have taken the time to love me where I’m at and patiently help me get to a better place.  Thank you.

I know I’ll mess up again.  I know racism has had its ugly effect on me.  I know there are still offensive ways in me.

Search me, God, and know my heart; test me and know my anxious thoughts. See if there is any offensive way in me and lead me in the way everlasting. (Psalm 139:23-24)

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For context: I am white.  I am a follower of Jesus.  I deeply value the authority of the Bible. I am a church goer.  I work in non-profit contexts.  I have been on an intensive journey of listening, learning, and lamenting since May 8, 2020–what would have been Ahmaud Arbery’s 25th birthday.  

The influencers who have significantly informed my understanding, challenged my beliefs on issues of systemic racism, and shaped how I craft my words are: Dr. MLK Jr.Dr. Robin Diangelo, Dr. Anita Phillips, Jemar Tisby, and Mona Haydar.  And my friends, Befkadu Meshesha and Ian Simkins.

Compromised: Immuno-and-Otherwise

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I got a call the other day from Dr. K, my former hematologist-oncologist of 15 years.  From Michigan.  I don’t know if it’s the weight of the heavy Colorado spring snow on budding branches, or the heaviness of a pandemic that hangs on every soul, but I cherish the check ins that comes my way.

Being officially in the immunocompromised category by chronic leukemia and the immunotherapy treatment for it, I feel privileged to receive random check in calls from caring people wanting to know if I am doing okay during this pandemonium that has taken over the globe.  They want to make sure I am taking extra care of myself.

Emotionally Broadsided

When Dr. K called, I felt emotionally broadsided by the unexpected check in.  I’m sure he has a million things to think about at the main hospital, hit hard with COVID-19, in the heart of Detroit.  But he paused to think of me.  To make sure I was doing okay.

That call confirmed my self-diagnosis.  I am emotionally compromised.  Yup.  Emotions are just below the surface and ready to well up. At. Any. Moment.

Just a fair warning:  If you call to check in and say kind things—I’ll probably cry.  If you stop to tell me your sad or touching news—I’ll probably cry.  It’s possible I might start out laughing at something and end up crying.  Or vice versa. Why limit ourselves to one emotion at a time when we can feel multiple, complex emotions simultaneously?

Mentally Tumbled

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And then there’s my brain. My thoughts tumble around in my head like wet laundry.  The significant intertwined with the curious and bombarded with the mundane and distracted.  Chaotic and scattered.  It’s the opposite of focused.  I’m lacking goals, and trajectory is vague.  So many thoughts circling around in each presented moment.  Yup.  Definitely mentally compromised, too.

“How is Strength my Weakness?”

My favorite part of the movie Jumanji: Welcome to the Jungle is when the characters discover that they each have specific strengths and weakness within the Jumanji game.  Kevin Hart’s character discovers that strength is actually on his list of Weaknesses.

Jumanji-Strength my weakness?

I love his question: 

“How is strength my weakness?”

But I also like to flip things around:

What if weakness is actually my strength?

What if tears are my superpower? And grief is a place I’ve grown comfortable with?

What if chronic hope comes from chronic illness?

What if immunocompromised means I’m also immuno-alert?

What if mentally scattered means centered in the present?

What if my limitations are the exact ingredients of sensitive, present, and vulnerable I need now, in the middle of a pandemic?

Broadsided by Grace

If I were to connect with the Designer of my strengths and weaknesses, how would that go?

I imagine it to be similar to The Apostle Paul’s process, being broadsided by grace—grace that came through a conduit of weakness.

Paul pleaded and discussed with the Divine to take away his weakness.

His Designer declared:

My grace is enough; it’s all you need.

My strength comes into its own in your weakness.

And so, the Apostle Paul relinquished himself to be broadsided by grace:

Once I heard that, I was glad to let it happen. I quit focusing on the handicap and began appreciating the gift. It was a case of Christ’s strength moving in on my weakness. Now I take limitations in stride… And so the weaker I get, the stronger I become.  (2 Cor. 12:9-10)

Weakness was the Saint’s necessary ingredient for greater sources of grace.

To hear the voice of my Designer…  Not to tell me I am healed or that I am strong. But to hear that at the heart of humanity is weakness, and that on my list of strengths, weakness is at the top.

The weaker I get, the stronger I become.  In my current mentally scattered state, I’m okay to sit in the presence of this paradox.  I’m okay to lavishly love on another grieving soul with my unstoppable tears.  I’m awkwardly eager to hold up my best super girl akimbo pose with my favorite napping blanket flapping cape-like behind me in the wind.

I’m surprisingly okay.  Immuno-okay.  I’m being cautious, and there’s not much to report health wise or otherwise.  So strong in weakness.  So okay with my compromised state (at least in this present moment).

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